Supporting the needs of quilters and sewists with health challenges such as autoimmune disease, vision
problems, arthritis and other disabilities so they can continue to
experience their love of sewing.
First off, I gotta say I was blown away from the response to this blog. I got messages all over social media and it was quite clear that I struck a chord. So many of you are looking for solutions that allow you to sew longer and better.
One comment in particular got my attention last week. A reader on Instagram mentioned that she bought her 8 Series BERNINA because she had R.A. My mind started racing. OF COURSE, the sewing machine!!! What features should you look for when buying a sewing machine if you have autoimmune disease, arthritis, vision problems or limited mobility?
Now, in the interest of full disclosure, I think it is safe to say that I bleed BERNINA red. I love everything about the company and the machines they produce. I am also a brand ambassador which means that they provide me with a sewing machine to use for a year. I think it is pretty safe to say that I will be purchasing my current loaner, the B790, at the end of the year. She is like an extension of my hands.
Cleaning your studio takes a really long time!
Everything takes longer with Autoimmune disease. This was me as I was cleaning.
I am allergic to dust and my dry lungs don't like cleaning! The good news is my room is all dusted and nice now. Wanna see?
Much more inviting, methinks.
One of my biggest issues was organizing multiple projects that I am working on at the same time. Apparently, I was not the only one. I got this question asked on my Facebook page by Laurie:
"Tracy, I think what you are doing is great! This question might be best
asked of the quilt teachers and book writers that I imagine have very
busy lives.......HOW do you save time? Do you draw up your design first
and then "kit it up?" Do you have an assistant? If so, what do you have
them do for you in the way of making a quilt? Also, how do they make the
best use of their time? You know, those small amounts of time that are
broken up by days of not quilting."
Quilting has become much more than a hobby for me. I write for Generation Q Magazine and I design projects for kids to sew in the feature We Sew 2. I also teach kids sewing classes. On any given day, I am going between writing, editing and sewing.
In other words I keep several balls in the air as I juggle numerous projects each day. Add in an autoimmune disease like Sjogren's Syndrome and it is amazing I get as much done as I do. The struggle is real.
Brain fog is real people.
It's a lot. I drop balls all the time. Some days I can't write because I am in pain. Other days I can't cut fabric unless I use my Sizzix for fear of ruining fabric. Most days I have just enough brain fog going that I have to retrace my steps on a project to remember where I left off. It's hard.